I asked Dr. Arata to tell me the percentage
of stenosis and he responded that "stenosis" was actually an incorrect
description of what was going on.
"Stenosis" means a narrowing of the vein. So, while
technically correct, it's not really descriptive of what is going
on - at least
in my case. There can be other reasons for a narrowing or 'stenosis'.
However, what was going on for me (and for most people with MS)
was a malformed valve - the valve has closed and does not open
Think of a sphincter muscle or rubber band.
Dr. Arata said that these valves occur every 5~7cm in the veins
and some have ceased to work properly.
Note his report on the 'My Experience' page
His treatment is to use the balloon to expand the valve/sphincter
muscle till it breaks (think of expanding a rubber band till it
His opinion was that once the valve was broken/destroyed, if everything
went well for the next 6 months (i.e. no problems in the treated
valve area with scarring or clots) then there would be no restenosis
and the vein would remain open for the rest of my life. In other
words, no further treatment was needed.
I asked about Dr. Hewitt's comments that restenosis was inevitable
after 3~5 years but Dr Arata said that in this case, with the repair
of a malformed valve, his opinion was that only this singular
treatment was all that was needed.
He indicated that my left side jugular vein was almost completely
blocked off and the right side jugular vein significantly blocked
off - but didn't give me any percentages :-).
There have been studies which suggest that this malformed valve
is a result of genetics and therefore present from birth and therefore
a cause or precursor/forerunner to MS.
And there have been some
recent studies that suggest the malformed valves
are a result of MS - i.e. that MS causes the valves to cease to
Based on my own experience that many of the CCSVI
symptoms have been there since I was young, I prefer the genetic
So now I can blame mom & dad for my MS (just kidding guys :-)
- but more importantly - we have the tools to correct a genetic
defect - and that's pretty special!